Searching for the right combination

There was a time, not so long ago, that I wasn’t taking any prescription drugs. It was fantastic. But then 2018 came crashing onto the scene and now I am picking up one refill or another at the pharmacy just about every week. I’ve been on five different medications at one point or another since January and I’m still searching for the right one(s). In my post about my health last week I mentioned that I’ve been taking 1 mg of Requip, a Parkinson’s and Restless Leg Syndrome (RLS) treatment, to calm my legs at night so that I can fall asleep. While I believe that it has been somewhat effective, meaning I can go to sleep without leg spasms now, I am still not feeling 100% like myself again. Not only do I still have twitchy legs sometimes during the day, but I’m so tired all the time. And some days I just can’t get out of bed at all. I can sleep all day, and it doesn’t feel like a choice I’m making. I just wake up in the afternoon/evening and feel depressed that I’ve lost yet another day to my poor health. And the kicker is that I never feel rested no matter how much I sleep. For example, the other day I opened my eyes and the clock on my nightstand said 5:30 PM! I managed to drag myself out of bed, get dressed and go to my boot camp class at 8 PM, and then went back to sleep at 11:30 PM. I was only awake for 6 hours that day and I was still tired when I got up to go to work the next morning! It’s beyond ridiculous. I can’t afford for this to continue, both monetarily (I need to work to support myself!) and mentally (I am at the end of my rope!). Fortunately I had my long-awaited appointment with the neurologist yesterday afternoon. I explained all of my symptoms to him, showed him copies of my blood work from December and my sleep study in May, and told him what pharmaceuticals I have tried so far. After laying it all out on the table the doctor was a bit baffled by the whole picture. It was frustrating, but understandable. All of the other medical professionals I have seen so far have been baffled too. My symptoms don’t all fit into one nice, easy, predefined diagnosis. Of course it isn’t that simple! Some things point to RLS, but others suggest Periodic Limb Movement Disorder (PLMD), while a few could be signs of a more serious affliction. So while I don’t have any definitive answers, the neurologist did write me a prescription for another drug to try in combination with the Requip. So I will be adding Gabapentin to my nightly pill dosage to see if it makes a difference. On top of that, I have instructions to double the dose in one week if the initial amount doesn’t seem to be working at all. I also have another appointment in September to report back on the results, and perhaps conduct some further tests. (The doctor seemed concerned that I could visually see my muscles contract during the leg spasms, so he might order some electrical stimulation tests to see what’s going on in there.) I’m still encouraged by this progress, even if it is small. Finding the right combination of medications is the key to relief and the neurologist told me that it might take a while. After two and a half years of dealing with this issue I will try to be patient as we zero in on a solution!